Anyway. We survived the MRI and we're back from Denver. The MRI went well, the sedation went without complications, I wish I could post the video of Isaiah licking the DVD player but for some reason I can't. Maybe it's better that way, he may not be too happy about this in a couple of years, haha. Waking up was not as much fun. He was very confused and upset when the nurses handed him to me. I had a very hard time holding him and was quite afraid that I might hurt him. He wanted to get down, kicked and swung his arms. At least the results were good, it showed no new damage only the damage from the stroke is still visible.
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| Before sedation |
Look at him!
The nurses adored him but that's nothing new, lol. Sissy joined us after playing in the sibling room for a couple of hours.
He did very well, too well almost. The night wasn't as restless as usual and we all slept surprisingly well at the hospital. We got the results the next morning. Isaiah's EEG was amazing according to the doctor, considering that he suffered brain damage before birth. There was only 10% abnormal brain activity, always limited to one area in his left temporal lobe. This is no surprise as it's the area where the stroke caused damage. This is not bad news either. A certain percentage of abnormal brain activity is actually quite normal for a stroke survivor. It also is proof that his late night awakenings are a result of said activity. 10% are too low to medicate. What does that mean? There are spikes and waves, but it doesn't come to a seizure. At this point, it's not harmful which is why Isaiah does not get medicine. That's the good news. The not so good news is, that we still have no answer as to what will help him sleep through the night. So back to trial and error we go. We have discussed bringing Melatonin into the mix if all else fails. The weighted blanket has almost lost its powers, that's the problem with sensory issues that are subject to change. I can't tell you the last time Isaiah and therefore I, slept through the night. Sigh.
I know I've promised you a post about Isaiah's birthday and I shall keep that promise. I will also attempt to post about the S.T.O.M.P. training I attended recently. For those of you not familiar with S.T.O.M.P., it stands for Specialized Training of Military Parents. They specialize in training parents of children with disabilities, share information about IEP, SSI, guardianship, PCS, etc. Let me just say, this two day training has been such a blessing that I want to share their wisdom with you all! Til then go check out their Facebook page.
Love,
